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HRBA and Privacy by Design

About the Health Record Banking Alliance
The Health Record Banking Alliance (HRBA) is a non-profit membership organization with the goal of establishing accurate, secure, and comprehensive health records that can be accessed and authenticated by both patients and their health care providers under the control of the individual patient. We advocate for community repositories of electronic health records (health record banks) as an effective and sustainable health information infrastructure solution, provide assistance to communities building health record banks, and promote necessary legislation & regulation consistent with community health record banks (see http://www.healthbanking.org). HRBA members include state and community health information exchange organizations, health information providers, physicians, and vendors interested in health information technology, exchange, and services.

With so many openly sharing information about themselves on the Internet, it’s easy to believe that privacy is no longer a concern for most people. San Diego Gas & Electric (SDG&E) does not subscribe to that perception. As a utility servicing 3.5 million customers across San Diego and southern Orange counties, SDG&E recognizes the potential impact that existing and emerging energy-related services can have on privacy. SDG&E has taken a strong position to safeguard customer privacy. SDG&E believes privacy is a fundamental right of every customer and is committed to doing our part to advocate for privacy on behalf of our customers and our community. We work collaboratively with external partners to find ways to advance our privacy program and raise awareness about privacy issues.

Privacy by Design (PbD) is a set of seven guiding principles for enabling privacy in fast-growing and technologically advanced environments. By emphasizing these timely principles in development of the smart grid, SDG&E has taken a leadership role in customer privacy.

SDG&E is a regulated public utility that provides energy service to 3.5 million people through 1.4 million electric meters and 850,000 natural gas meters in San Diego and southern Orange counties. Our service area spans 4,100 square miles. We employ about 5,000 people who work every day to deliver the energy our customers need.

Privacy is a fundamental right of every one of our customers and a priority of San Diego Gas & Electric.

SDG&E and Privacy by Design

Infonaut is a privately held Canadian company born out of Ontario’s SARS crisis, and dedicated to evidence-based solutions for infectious disease surveillance to control and stop superbug infections in hospitals in an effort to prevent infectious deaths and morbidity.

Our solution, Hospital Watch Live, helps solve the mystery of how healthcare acquired infections move about a facility. It tracks, in real time, the vectors and risks of communicable infectious diseases to understand and help break the chain of infection transmission in hospitals. We bring a location aware enterprise risk management approach to improving quality. The outcome is a dramatic improvement in patient and workplace safety resulting in massive savings.

Hospital Watch Live easily integrates into existing hospital systems. The deployment of a Real Time Location Systems (RTLS) into clinical environments allows hospitals to track and store all movement, contact and interaction of patient, staff and assets. This provides instant, risk-rated contact tracing, with predictive analysis of patterns and disease reservoirs.

There are universally accepted techniques and methods based on an understanding of ‘history of location’ and ‘transmission’ common to diseases surveillance and infection control that form the basis for the science of epidemiology. For the first time, Infonaut uniquely automates and applies these techniques inside the hospital via a patented platform and process to provide superior infection control that has global applicability.

Infonaut has received recognition and acknowledgement from international leaders in hospital infection control, leading global hospital technology vendors, trade journals, mass market publications and globally recognized market analyst firms.

Our solution was designed from the initial concept with respect for privacy and ethics. We believe that our commitment to the Privacy By Design philosophy represents a major competitive advantage.

Infonaut and Privacy by Design

The Ontario Telemedicine Network (OTN) is one of the largest and most active telemedicine networks in the world. OTN uses two-way videoconferencing and other technologies to provide access to care for more than 135,000 patients annually (2011 statistics) in every hospital and hundreds of health care locations across the province and is growing by 30% annually. OTN also facilitates the delivery of tens of thousands distance education opportunities and meetings for health care professionals and patients.

OTN has made ensuring that all activity conducted across the Network is both private and secure a strategic priority, embedding Privacy by Design Principles directly into its operations. OTN was the recipient of the 2011 HP-IAPP Innovation Award for a small organization (<500 employees), in recognition of its efforts to improve privacy. OTN is an independent, not-for-profit organization, funded by the Government of Ontario.

Ontario Telemedicine Network (OTN) and Privacy by Design

Information Security and Risk Management

Informatica and Privacy by Design

Informatica provides security consulting and privacy advisory services to diverse sectors and organizations in Canada and around the world.

Informatica is the only Canadian company that leverages global standards and proven methodologies to implement innovative information risk strategies based on all three pillars of information security. These incorporate risk assessments, project management, executive decision support and workforce education. The company’s spectrum of professionally certified expertise includes risk governance, legislative compliance, business continuity and incident management.

Leading organizations and different levels of government choose Informatica Security for recurring risk assessments, recurring workforce education, enterprise project management and on-going advisory expertise. Clients have included TD Bank, PWC, IBM and many others. With over 20 years of history, Informatica remains a highly respected source of information management and data protection leadership. Informatica is proud to have been selected by the Office of the Information and Privacy Commissioner of Ontario as an Organizational Ambassador for Privacy by Design.

Under the guidance of President and CEO Claudiu Popa, a leading security expert and Privacy by Design Ambassador, Informatica continues to offer innovative solutions through high level industry partnerships, reputable publications and participation in global initiatives to advance best practices for data security and privacy compliance.

Democratizing data – an idea whose time has finally come

The concept of a trusted agent or “infomediary” to help people manage and represent their data goes back to the 1990s. Today’s always-connected world has finally created an urgent need for a platform to do just that.

We believe we are on the right side of history. People will look back in a few years and wonder how companies could have ever imagined owning all of our personal data. Take control of your data and make them ask permission.

Personal.com and Privacy by Design

Nymity is a global privacy and data protection research services firm with a specific focus on compliance and operational risk management. Nymity research is currently conducted within the United States, Europe and Canada with expansion into the Pacific-Rim and South America in 2010.

Nymity and Privacy by Design

Canada Health Infoway (Infoway) is an independent, not-for-profit corporation funded by the federal government. Infoway jointly invests with every province and territory to accelerate the development and adoption of electronic health record (EHR) projects across Canada. While respecting patient confidentiality, these secure systems will provide clinicians with the information they need to better support safe care decisions and similarly provide patients with information to help them manage their own health. Accessing this vital information quickly will help foster a health system distinguished by greater availability, quality and productivity.

Infoway and Privacy by Design